BUT the GOOD news is that Kiersyn has been sleeping like a normal baby for an entire WEEK!!! By normal I mean in a non-elevated crib, not on a wedge or an incline and without being strapped in, or velcroed down! This is a huge step for baby K! Since Kiersyn has never had the ability to move around freely in her sleep or while going to sleep, it took a little bit of adjustment but she is doing SO well. Of course in our world that means still waking up multiple times a night... just not screaming during the night or having flares during the day.
We have let Kiersyn stay on Carafate (her "feel good" medicine) and there is a large part of me that is very concerned she is only able to sleep this way because of the medicine that she will have to stop taking soon. What I'm realizing about this journey is that I can't focus on the future what-ifs. For now, Kiersyn is sleeping wild and free - and we're celebrating!
We're also celebrating the RAIN!
Not much else going on around here besides
Lex and K becoming pals - notice the theme of their relationship...
Oh my woooord those are such cute pictures!
ReplyDeleteLove them!!!